@article{oai:niconurs.repo.nii.ac.jp:00001144,
 author = {北村, 千章 and Kitamura, Chiaki and 西條, 竜也 and Nishijo, Tatsuya},
 issue = {2},
 journal = {日本成人先天性心疾患学会雑誌, Journal of Adult Congenital Heart Disease},
 month = {},
 note = {application/pdf, Journal Article, 【背景】先天性心疾患をもつ子どもは，社会参加する発達段階に達した時に直面する問題は大きい．しかし，その子どもを育てる母親の関わりに関する先行研究は少ない．
【方法】先天性心疾患をもつ子どもの出産から成人期に至るまでの母親のライフストーリーを通して，子どもがひとり立ちするための母親の関わりの具体的事例を明らかにした．
【結果】母親の子育てストーリーは，＜一日一日を短い命と共に過ごす覚悟で育てる＞＜わが子の生きようとする力を発見する＞＜できる限りわが子の興味があることをやらせる＞＜学校の支援を信じてわが子の手を思い切って離す＞＜わが子に自分自身の病気を理解させる＞＜病気に逃げこまないで，自分自身の努力が必要なことをわが子に伝える＞＜わが子の意志決定を見守る＞＜守る会の仲間から子育てのヒントを得る＞＜わが子をできるだけ普通に育てる＞から構成された．
【結論】子どもがひとり立ちするための母親の関わりとしてもっとも重要なことは，母親が子ども自身のもつ力をキャッチして他者の支援を信じて子どもの手を思い切って離すことである．, Background: Background: Children with congenital heart disease face serious challenges upon reaching the point of being able to participate in society. However, there is little research focusing on the involvement of mothers in the raising of such children.
Methods: This research paper presents a case study detailing the involvement of a mother in the nurturing of independence in her child, through a life story of a mother of a child with congenital heart disease, from her child’s birth through to reaching adulthood.
Results: The mother’s narrative of childrearing consisted of the following elements: Raising her child while resigning herself to the fact that everyday could be the last for her child; Discovering her child’s will to live; Allowing her child to follow the child’s own interests, as much possible; Trusting in the support of the school and letting go of her child; Helping her child understand the child’s own illness; Letting her child know that one cannot run away from one’s own health condition, and that it will require effort on the part of the child to manage the illness; Watching over her child’s decision making; Gaining helpful hints from others in peer support groups; Raising her child in as normal a way as possible.
Conclusion: The most important thing for mothers to do in order to foster the independence of their child is to appreciate the strengths of their child, and trusting in the support of others, let go of their child’s hand and allow them the space to stand on their own two feet., 原著論文},
 pages = {45--52},
 title = {先天性心疾患をもつ子どもをひとり立ちするまでに育てた母親のライフストーリー},
 volume = {6},
 year = {2017},
 yomi = {キタムラ, チアキ and ニシジョウ, タツヤ}
}